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Alliance
for Epilepsy Research
Susan Arthurs,
ED 866-237-2929
Raises funds for epilepsy research and increases public awareness
of epilepsy and its problems. Provides patients, family members and
others the opportunity to be personally involved in bringing about
positive changes for those with epilepsy.
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Alzheimer's
Association, Heart of America
Debra Brook,
Executive Director 913-831-3888
Provides support and assistance to Alzheimer’s patients and families,
research for the prevention, cure and treatment of Alzheimer’s
disease and related disorders.
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American
Liver Foundation MO/KS Chapter
Katherine
Auble , Executive Director 866-455-4837
Nation's leading organization for liver health promotion and disease
prevention providing research, education and advocacy for those affected
by hepatitis and other liver related diseases.
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American
Lung Association - Central States
Phil Hanson,
816-842-5242
Promotes lung health and the conquest of lung disease, via public
and professional programs and services relative to smoking cessation,
allergy and asthma and the environment.
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ALS
Association, Keith Worthington Chapter
Beckie Cooper,
Executive Director 913-648-2062
Provides information, referral, in-service training, individual and
group support/counseling; equipment loan to people with ALS (also
known as Lou Gehrig’s disease); and raises money for ALS research.
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American
Society of Lymphology
Cheryl Morgan,
President 800-355-6770
Established lymphology as a medical specialty. Provides patients and
health care professionals with reliable resources, information, educational
opportunities and comprehensive patient assistance programs. Lymphatic
and related venous disorders can lead to the abnormal accumulation
of fluids in the tissues of the body, face, neck, or an extremity.
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Arthritis
Foundation of Western Missouri, Greater Kansas City
Brad Ziegler,
President 913-262-2233
Funds research to find the cure and prevention of arthritis and improve
the quality of life through local programs for those affected by arthritis.
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Asthma
& Allergy Foundation of America
Melissa Ford,
Executive Director 816-333-6608
Provides professional and patient education programs, free educational
materials and asthma equipment, prescription assistance, support groups,
summer camp, scholarships and Smoke-Free Dining Guide.
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Brain
Injury Association of Kansas and Greater Kansas City
Janell Mallein-Skinner
816-842-8607
Aims to improve the quality of life for persons with head injury,
provides support to their families and develops programs to prevent
head injury.
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Community
Health Charities of Kansas/Missouri
Sandra Vader,
President 913-831-7002
Raising funds on behalf of our member agencies for medical research,
public and professional services through work place giving campaigns.
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Down
Syndrome Guild of Greater Kansas City
Amy Allison,
Executive Director 913-384-4848
Provides support and resources for individuals with Down Syndrome
and their families, while providing education to increase awareness
and foster positive attitudes throughout the community.
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Fibromyalgia
Coalition International
Yvonne Keeny,
Executive Director 913-384-4673
Provides information to patients and healthcare providers, and
supports research to reverse fibromyalgia and chronic fatigue syndrome
to improve diagnosis and treat symptoms.
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Gift
of Life, Inc.
Keith Anderson
913-851-1947
Saves
lives by supporting awareness of the urgent need for organ donations.
In Missouri and Kansas, 3000 people await life-saving transplants.
Help others live.
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International
Essential Tremor Foundation
Cathy Rice 913-341-3880
IETF provides information, services and support to individuals and
families affected by essential tremor. The organization supports research
to determine the causes, treatment and cure for essential tremor.
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Joshua
Child & Family Development Center
Becky Ottinger,
Executive Director 816-763-7605
Supports programs designed to improve the lives of individuals and
families living with Tourette Syndrome and its associated disorders
through research, education, social and clinical programs.
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Juvenile
Diabetes Research Foundation International, Kansas City Chapter
Yvonne Miller,
Executive Director 816-472-7997
Funds research for the prevention and cure of diabetes and its complications.
Promotes diabetes awareness and support through community, media and
corporate-based programs.
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Kansas
City Hospice & Palliative Care
Elaine McIntosh,
Executive Director 816-363-2600
Provides comfort care and support in the home or nursing home, to
those facing life limiting illness and their loved ones. Hospice teams
provide emotional, spiritual as well as medical support to address
patient/family needs. Services available for adults and children.
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Leukemia
and Lymphoma Society of America
Janna LaCock,
Executive Director 800-256-1075
Dedicated to curing leukemia, lymphoma, Hodgkin’s disease and
myeloma and improving the quality of life for patients and families.
Contributions sustain research, education programs and patient support
services.
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Lupus
Foundation of America, Kansas City Chapter
Arletha Manlove,
President 816-761-0850
Supports research, provides public education, support for patients
and offers an information exchange among health officials until a
cure is found.
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March
of Dimes, Kansas and Western Missouri
Diane Daldrup,
State Director 913-469-3611
Improves the health of babies by preventing birth defects and infant
mortality through programs of research, community services, education
and advocacy.
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Midwest
Christian Counseling Center
Dave Ehman,
Ph.D., Executive Director 816-561-3726
Develops and supports health programs of a preventive, diagnostic,
treatment, educational and research nature. Addresses psychological
and psychiatric disorders, as well as emotional and relationship problems.
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Midwest
Ear Institute
Irwin Herrero,
816-932-1660
Provides evaluation and treatment for children and adults with severe
hearing loss and other ear-related disorders. Contributions sustain
treatment, clinical research and education of patients, their families
and professionals in the field.
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Missouri
Hospice Organization
Cindy Baird,
Executive Director 816-524-9505
Advocate for the needs of patients and their families at the end of
life. Mission is to improve education, communication, technical assistance
and referrals.
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NAMI
of Greater Kansas City
Guyla R. Stidmon,
Executive Director 816-931-0030
Dedicated to improving the quality of life for people with severe
mental illness, their families and friends through support, education,
advocacy and research.
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National
Marrow Donor Program
Gayle Bass,
Executive Director 913-901-3100
Recruits, manages and cares for volunteers willing to become bone
marrow donors. The program involves recruitment of volunteers through
community efforts, corporations and groups.
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National
Multiple Sclerosis Society
Kay Julian,
President 913-432-3926
Provides information, education and support to people with MS, their
families and care partners. Supports research into the cause, treatment
and cure of MS.
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Northland
Therapeutic Riding Center
ElizabethThompson,
Executive Director 816-472-1855
Provides equine-oriented, rehabilitative therapy for children and
adults with special needs, including autism; MS; hearing, speech and
visual challenges; cerebral palsy; and Down Syndrome.
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NOVA
Center, Inc.
Cary Williams,
CEO 816-761-8614
NOVA specializes in working with persons from one year through adulthood
with Autism and developmental disabilities (L.D., B.D., E.M.H.). Services
include school, in-home support for families, day programs, counseling,
vocational programs and residential programs.
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Parkinson
Foundation of the Heartland
Meg Duggan,
Executive Director 913-341-8828
Provides education to the childbearing public and improves the
quality of life for persons with sickle cell disease by providing
a variety of services to affected patients and their families.
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Sickle
Cell Disease Association of America
Jim Collier,
Executive Director, Kansas City Chapter 816-444-5600
Eric Kirkwood, Executive Director, Uriel
Owens Chapter 913-621-1713 Provides education to
the childbearing public and improves the quality of life for persons
with sickle cell disease by providing a variety of services to affected
patients and their families.
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SIDS
Resources, Inc.
Cheryl Arneill,
816-569-6956
Serves those who are or may be touched by the tragedy of Sudden and
unexpected Infant Death by providing supportive services for families,
education for professionals, community education and financial and
other support for research.
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