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Alliance
for Epilepsy Research
Susan Arthurs,
ED 866-237-2929
Raises funds for epilepsy research and increases public awareness
of epilepsy and its problems. Provides patients, family members
and others the opportunity to be personally involved in bringing
about positive changes for those with epilepsy.
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Alzheimer's
Association
Debra Brook,
Executive Director 913-831-3888
Provides support and assistance to Alzheimer’s patients and families,
research for the prevention, cure and treatment of Alzheimer’s
disease and related disorders. |
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American
Liver Foundation
Katherine
Auble, Executive Director 314-352-7875
Is the leading nonprofit organization dedicated to promoting liver
wellness and preventing heaptitis and other liver diseases through
research education and advocacy.
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American
Lung Association Central States
Phil Hanson,
Executive Director 816-842-5242
Preventing lung disease and promoting lung health through programs
designed for asthma education, smoking prevention/cessation, clean
air advocacy and lung disease research. Creating Asthma Clinical Research
Center in Kansas City, MO. |
ALS
Association, Keith Worthington Chapter
Beckie Cooper,
Executive Director 913-648-2062
Provides information, referral, in-service training, individual and
group support/counseling; equipment loan to people with ALS (also
known as Lou Gehrig’s disease); and raises money for ALS research. |
American
Society of Lymphology
Cheryl Morgan,
President 800-355-6770
Established lymphology as a medical specialty. Provides patients and
health care professionals with reliable resources, information, educational
opportunities and comprehensive patient assistance programs. Lymphatic
and related venous disorders can lead to the abnormal accumulation
of fluids in the tissues of the body, face, neck, or an extremity. |
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Arthritis
Foundation of Kansas
Dennis Bender,
President 316-263-9116
Helps men, women and children take control of thier Arthritis by
providing exercise programs, support groups, self-help courses,
mobility aids, educational forums and sponsored research.
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Arthritis
Foundation of Western Missouri, Greater Kansas City
Brad Ziegler,
President 816-753-2220
Funds research to find the cure and prevention of arthritis and improve
the quality of life through local programs for those affected by arthritis. |
Asthma
& Allergy Foundation of America
Noel Albert,
Executive Director 816-333-6608
Provides professional and patient education programs, free educational
materials and asthma equipment, prescription assistance, support groups,
summer camp, scholarships and Smoke-Free Dining Guide. |
Brain
Injury Association of Kansas and Greater Kansas City
Janell Mallein-Skinner 816-842-8607
Aims to improve the quality of life for persons with head injury,
provides support to their families and develops programs to prevent
head injury. |
Community
Health Charities of Kansas/Missouri
Sandra Vader,
President 913-831-7002
Raising funds on behalf of our member agencies for medical research,
public and professional services through work place giving campaigns. |
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Crohn's
& Colitis Foundation Mid-America Chapter
Steve Skodak,
Executive Director 314-991-0220
Raises funds for research and provides education and support to
improve the quality of life of children and adults affected by these
digestive diseases.
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Cystic
Fibrosis Foundation - Heart of America Chapter
Greg Alejos,
Executive Director 913-384-1225
Supports innovative research to control and cure Cystic Fibrosis.
Provides specialized medical care through a nationwide network of
centers and offices and offers pharmacy and other patient services. |
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Down
Syndrome Guild of Greater Kansas City
Amy Allison,
Executive Director 913-384-4848
Provides support and resources for individuals with Down Syndrome
and their families, while provideing education to increase awarness
and foster positive attitudes throughout the community.
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Fibromyalgia
Coalition International
Yvonne Keeny,
Executive Director 913-384-4673
Provides information to patients and healthcare providers, and
supports research to reverse fibromyalgia and chronic fatigue syndrome
to improve diagnosis and treat symptoms.
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Gift
of Life
Keith Anderson,
Executive Director, 913-814-7857
Save lives by supporting awarness of the urgent need for organ donations.
In Missouri and Kansas, 3,000 people await life-saving transplants.
Help others live.
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Helping
Hands Therapeutic Riding Center
Janellen Cappo,
Executive Director 816-697-5400
Our mission is to improve the health and quality of life for
children and adults with disabilities through hippotherapy.
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Huntington's
Disease Society of America, St. Louis Chapter
Peggy Cribbin,
Development Coordinator 314-961-4372
We are dedicated to improving the lives of those touched by Huntington's
Disease (HD) by supporting research, assisting those with HD and
education.
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International
Essential Tremor Foundation
Cathy Rice,
Executive Director 913-341-3880
IETF provides information, services and support to individuals and
families affected by essential tremor. The organization supports research
to determine the causes, treatment and cure for essential tremor. |
Joshua
Child and Family Development Center
Becky Ottinger,
Executive Director 816-763-7605
Supports programs designed to improve the lives of individuals and
families living with Tourette Syndrome and its associated disorders
through research, education, social and clinical programs. |
Juvenile
Diabetes Research Foundation International Kansas City Chapter
Yvonne Miller,
Executive Director 816-472-7997
Funds research for the prevention and cure of diabetes and its complications.
Promotes diabetes awareness and support through community, media and
corporate-based programs. |
Kansas
City Hospice
Elaine McIntosh,
Development Coordinator, 816-363-2600
Compassionare care, emotional and spiritual support for terminally
ill adults and children and their families. Bereavement program comforts
the grieving and helps keep families together. |
Leukemia
and Lymphoma Society of America
Janna LaCock,
Executive Director 800-256-1075
Dedicated to curing leukemia, lymphoma, Hodgkin’s disease and
myeloma and improving the quality of life for patients and families.
Contributions sustain research, education programs and patient support
services. |
Lupus
Foundation of America, Inc. Kansas City Chapter
Arletha Manlove,
President 816-761-0850
Supports research, provides public education, support for patients
and offers an information exchange among health officials until a
cure is found. |
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March
of Dimes Greater Kansas Chapter
Diane Daldrup,
State Program Svcs Director 913-469-3611
Improves the health of babies by preventing birth defects and infant
mortality through programs of research, community services, education
and advocacy.
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Midwest
Christian Counseling Center
Dave Ehman,
Executive Director Director 816-561-3726
Provides increased access to quality psychological and relationship
mental health care for all people regardless of
race, ethnicity, gender, creed, age or financial status. |
Midwest
Ear Institute
Irwin Herrero,
816-932-1660
Provides evaluation and treatment for children and adults with severe
hearing loss and other ear-related disorders. Contributions sustain
treatment, clinical research and education of patients, their families
and professionals in the field. |
Missouri
Hospice Organization
Cindy Baird,
Executive Director 816-350-7702
Advocate for the needs of patients and their families at the end of
life. Mission is to improve education, communication, technical assistance
and referrals. |
Muscular
Dystrophy Association
Darrell Smith,
Director 816-795-5333
Sponsors research into 40 neuromuscular disorders and provides comprehensive
services to people affected by these disorders. |
National
Alliance for Mentally Ill of Greater Kansas City
Guyla R. Stidmon,
Executive Director 816-931-0030
Dedicated to improving the quality of life for people with severe
mental illness, their families and friends through support, education,
advocacy and research. |
National
Marrow Donor Program
Gayle Bass,
Executive Director 913-901-3100
Recruits, manages and cares for volunteers willing to become bone
marrow donors. The program involves recruitment of volunteers through
community efforts, corporations and groups. |
National
Multiple Sclerosis Society
Kay Julian,
President 913-432-3926
Provides information, education and support to people with MS, their
families and care partners. Supports research into the cause, treatment
and cure of MS. |
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NOVA
Center, Inc.
Cary
Williams, CEO 816-761-8614
NOVA specializes in working with persons from one year through adulthood
with Autism and developmental disabilities (L.D., B.D., E.M.H.).
Services include school, in-home support for families, day programs,
counseling, vocational programs and residential programs.
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Parkinson
Foundation of the Heartland
Meg Duggan,
Executive Director 913-341-8828
Dedicated to serving and educating people with Parkinson's, their
caregivers, and medical professionals; and to funding
research to find its cause and cure.
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Sickle
Cell Disease Association of America Kansas City
Jim Collier,
Executive Director, Kansas City Chapter 816-444-5600
Provides education to the childbearing public and improves the
quality of life for persons with sickle cell disease by providing
a variety of services to affected patients and their families.
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Sickle
Cell Disease Association of America Uriel Owens
Linda Golson,
Executive Director, Uriel Owens Chapter 913-621-1713 Provides
education to the childbearing public and improves the quality of life
for persons with sickle cell disease by providing a variety of services
to affected patients and their families throughout the Greater Kansas
City area.. |
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Special
Olympics Kansas
Donna Zimmerman,
Vice President of Development 913-236-9290
Contributes to the physical, social and psychological development
of individuals with intellectual disabilities. Through sprots competition
participants gain confidence and build a positive self-image.
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SIDS
Resources, INC.
Cheryl Arneill,
816-569-6956
SIDSResources Inc. serves those touched by SIDS or any unexpected
infant death by supporting families, educationg professionals and
community and supporting research.
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St.
Judes Research Hospital
Brian Doyle,
Regional Director, 314-576-0427
Established for the sole purpose of conducting research into catastrophic
childhood diseases, allowing patient care for children everywhere
without regard for the ability to pay.
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Turner
Syndrome
Dennis McKenzie,
President 816-763-8884
Turner Syndrome is a chromosome disorder affecting women. Characteristics
include short stature, infertility, heart and kidney disorders.
Help us fund research and patient assistance.
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