| 010 |
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Alliance
for Epilepsy Research
Susan Arthurs,
Executive Director 866-237-2929
Raises funds for epilepsy research and increases public awareness
of epilepsy and its problems. Provides patients, family members and
others the opportunity to be personally involved in bringing about
positive changes for those with epilepsy.
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| 011 |
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ALS
Association, Keith Worthington Chapter
Beckie Cooper,
Executive Director 913-648-2062
Provides information, referral, in-service training, individual
and group support/counseling; equipment loan to people with ALS
(also known as Lou Gehrig’s disease); and raises money for
ALS research.
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| 012 |
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Alzheimer's
Association
Debra Brook,
Executive Director 913-831-3888
Provides support and assistance to Alzheimer’s patients and families,
research for the prevention, cure and treatment of Alzheimer’s
disease and related disorders.
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| 014 |
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American
Liver Foundation, MO/KS Chapter
Katherine
Auble , Executive Director 314-352-7377
The leading health organization dedicated to preventing, curing and
treating Hepatitis and other liver diseases through research, education
and advocacy.
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| 015 |
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American
Lung Association Central States
Phil Hanson,
Executive VP Resource Development 816-842-5242
Preventing lung disease and promoting lung health through programs
designed for asthma education, smoking prevention/cessation, clean
air advocacy and lung disease research. Creating Asthma Clinical
Research Center in Kansas City, MO.
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| 017 |
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Arthritis
Foundation of Western Missouri, Greater Kansas City
Brad Ziegler,
President 816-753-2220
Funds research to find the cure and prevention of arthritis and
improve the quality of life through local programs for those affected
by arthritis.
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| 018 |
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Asthma
& Allergy Foundation of America
Melissa Ford,
Executive Director 816-333-6608
Provides professional and patient education programs, free educational
materials and asthma equipment, prescription assistance, support groups,
summer camp, scholarships and Smoke-Free Dining Guide.
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| 019 |
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Brain
Injury Association of Kansas and Greater Kansas City
Lynn Flaherty,
Director 816-842-8607
Aims to improve the quality of life for persons with head injury,
provides support to their families and develops programs to prevent
head injury.
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| 024 |
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Down
Syndrome Guild of Greater Kansas City
Amy Allison,
Executive Director 913-384-4848
Prvides support and resources for individuals with Down Syndrome
and their families, while provideing education to increase awarness
and foster positive attitudes throughout the community.
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| 020 |
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Fibromyalgia
Coalition International
Yvonne Keeny,
Executive Director 913-384-4673
Provides information to patients and healthcare providers, and
supports research to reverse fibromyalgia and chronic fatigue syndrome
to improve diagnosis and treat symptoms.
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| 022 |
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Gift
of Life
Keith Anderson,
Executive Director, 913-814-7857
Save lives by supporting awarness of the urgent need for organ donations.
In Missouri and Kansas, 3,000 people await life-saving transplants.
Help others live.
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| 026 |
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International
Essential Tremor Foundation
Cathy Rice 913-341-3880
ITA provides information, services and support to individuals and
families affected by essential tremor. The organization supports
research to determine the causes, treatment and cure for essential
tremor.
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| 029 |
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Juvenile
Diabetes Research Foundation International, Kansas City Chapter
Yvonne Miller,
Executive Director 913-831-7997
Funds research for the prevention and cure of diabetes and its complications.
Promotes diabetes awareness and support through community, media and
corporate-based programs.
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| 047 |
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Kansas
City Hospice
Elaine McIntosh,
President/CEO 816-363-2600
Provides comfort and care to persons with life-limiting illnesses
and also provides for the spiritual and emotional needs of both
patient and loved ones.
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| 030 |
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Leukemia
and Lymphoma Society of America
Janna
LaCock, Executive Director 800-256-1075
Dedicated
to curing leukemia, lymphoma, Hodgkin’s disease and myeloma and
improving the quality of life for patients and families. Contributions
sustain research, education programs and patient support services.
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| 032 |
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Lupus
Foundation of America, Inc. Kansas City Chapter
Arletha
Manlove, President 816-761-0850
Supports research, provides public education, support for patients
and offers an information exchange among health officials until
a cure is found.
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| 071 |
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March
of Dimes, Greater Kansas Chapter
Diane Daldrup,
Director 816-469-3611
Improves the health of babies by preventing birth defects and infant
mortality through programs of research, community services, education
and advocacy.
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| 033 |
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Midwest
Christian Counseling Center
Dave Ehman,
Ph.D., Executive Director 816-561-3726
Develops and supports health programs of a preventive, diagnostic,
treatment, educational and research nature. Addresses psychological
and psychiatric disorders, as well as emotional and relationship problems.
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| 034 |
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Midwest
Ear Institute
Irwin
Herrero, 816-932-1660
Provides evaluation and treatment for children and adults with severe
hearing loss and other ear-related disorders. Contributions sustain
treatment, clinical research and education of patients, their families
and professionals in the field.
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| 035 |
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Missouri
Hospice Organization
Cindy Baird,
Executive Director 816-524-9505
Advocate for the needs of patients and their families at the end of
life. Mission is to improve education, communication, technical assistance
and referrals.
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| 037 |
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NAMI
- Kansas City Chapter
Guyla R.
Stidmon, Executive Director 816-931-0030
Dedicated to improving the quality of life for people with severe
mental illness, their families and friends through support, education,
advocacy and research.
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| 038 |
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National
Multiple Sclerosis Society
Kay Julian,
President 913-432-3926
Provides information, education and support to people with MS, their
families and care partners. Supports research into the cause, treatment
and cure of MS.
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| 039 |
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NOVA
Center, Inc.
Cary Williams,
CEO 816-761-8614
NOVA specializes in working with persons from one year through adulthood
with Autism and developmental disabilities (L.D., B.D., E.M.H.). Services
include school, in-home support for families, day programs, counseling,
vocational programs and residential programs.
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| 040 |
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Sickle
Cell Disease Association of America
Jim Collier,
Executive Director, Kansas City Chapter 816-444-5600
Provides
education to the childbearing public and improves the quality of
life for persons with sickle cell disease by providing a variety
of services to affected patients and their families.
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| 560 |
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St.
Judes Research Hospital
Charles Campbell,
Regional Director, 314-576-0427
Established for the sole purpose of conducting research into catastrophic
childhood diseases, allowing patient care for children everywhere
without regard for the ability to pay.
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| 087 |
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Sudden
Infant Death Syndrome
Cheryl Arneill,
Development 816-569-6956
Serves those who are or may be touched by the tragedy of Sudden
and unexpected Infant Death by providing supportive services for
families, education for professionals, community education and financial
and other support for research.
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